Online Health Resource > Diseases and Conditions

works to establish minimum standards of practice, to encourage professional growth, and to increase recognition of the genetic counselling profession in Canada.

http://www.cagc-accg.ca/

Chromosome 9P- Network

international not-for-profit organization dedicated to educating and bringing together families with children who have Alfi's syndrome.

http://www.9pminus.org/

Genetic Alliance

provides a global resource for genetics information including a directory of condition-specific lay advocacy member groups.

http://www.geneticalliance.org/

Genetic Health

offers general information on conditions, DNA mutations, genetic testing, and research participation.

http://www.genetichealth.com/

Genetic Interest Group

national U.K. alliance of organizations which support children, families, and individuals affected by genetic disorders and genetic diseases.

http://www.gig.org.uk/

Hereditary Disease Foundation

nonprofit, basic science organization dedicated to the cure of genetic disease.

http://www.hdfoundation.org/

Mucolipidosis IV Foundation

information forum on ML$, a rare genetic disease.

http://www.ml4.org/

Pallister-Killian Syndrome

information and support for this rare chromosomal disorder.

http://www.pk-syndrome.org/

Spiral Notebook: Carnitine Palmitoyl Transferase Deficiency

a newsletter about a rare genetic disorder of fat metabolism that causes muscle breakdown.

http://www.spiralnotebook.org/

The Stennis Foundation

Raising public awareness regarding Metachromatic Leukodystrophy (MLD) as well as funds for MLD research.

http://www.stennisfoundation.org/

Xeroderma Pigmentosum Society

provides information on the disease also known as XP.

http://www.xps.org/

Your Genes, Your Health

a multimedia guide to specific individual genetic disorders from the Dolan DNA Learning Center at Cold Spring Harbor Laboratory.

http://www.yourgenesyourhealth.org/

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